Welcome to UK MDS Forum

MDS - Myelodysplastic Syndromes

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

Latest News

UK MDS Forum Education Day - Thursday 26th September 2019

Royal College of Pathologist

6 Alie Street, London E1 8QT

We are delighted to introduce our Guest Speakers:

Professor Theo de Witte, Radboud University, Nijmegen, Netherlands

Terry Hamblin Memorial Lecture – Professor Ghulam Mufti, King’s College Hospital

Dr Daniel Wiseman, The Christie Hospital, Manchester
Dr Catherine Cargo, HMDS, Leeds
Dr Angela Hamblin, Oxford University Hospitals
Dr Kiran Batta and Dr John Chadwick, The Christie Hospital, Manchester

Read More

UK MDS Forum Education Day Latest Slides

UK MDS Forum Education Day - November 2018



(click on the links to access the presentations)
Professor Jude Fitzgibbon: Slider

MDS Call to Action

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Paper of the Month


With the use of advanced genomics this article provides a comprehensive registry of driver mutations recurrently found in MDS patients and correlates these with disease phenotype and prognosis.

Visit our archives

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator


Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners

MDS Fact Sheet

Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BSH Guidelines

This is an external link to the home of the British Society for Haematology (BSH). 

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Click here